ISSA Founding Members
ISSA is founded by 11 organizations from 11 different countries across 4 continents. If you are interested in becoming a member, please get in touch.

Association of support for medical research and for parents and children with Sanfilippo syndrome. Visit Asociación Sanfilippo Barcelona's website

Aims to support scientific research for treatments or cures for Sanfilippo syndrome and improve quality of life. Visit Associação Sanfilippo Brasil's website

Dedicated to informing and supporting families and encouraging research into Sanfilippo. Visit Associação Sanfilippo Portugal's website

Our mission is to advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo syndrome. Visit Cure Sanfilippo Foundation's website

Our mission is to bring care to children afflicted by Sanfilippo and their families. Visit Fondation Sanfilippo Suisse's website

Our priority is to improve and facilitate the lives of families suffering from Sanfilippo syndrome. Visit Fundación Stop Sanfilippo's website

Our goal is to find a cure for devastating, fatal infant disease Sanfilippo syndrome (MPS III). Visit Fundacja Sanfilippo's website

Association of support for medical research and support for parents and children with Sanfilippo syndrome. Visit Lāassociation Sanfilippo Sud's website
Our purpose is to drive research for a world without Sanfilippo syndrome. Visit Sanfilippo Children's Foundation's website

Our purpose is to stimulate attention and to raise funds for the search for a cure for Sanfilippo syndrome. Visit Sanfilippo Fighters' website

Our mission is to support research and clinical activity to deliver a cure for Sanfilippo syndrome. Visit Sanfilippo Initiative's website